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Resources:
The National Hemophilia Foundation
NHF Mission/Purpose:
The National Hemophilia
Foundation is dedicated to the treatment and the
cure of hemophilia, related bleeding disorders and
complications of those disorders or their treatment,
including HIV infection, as well as to improving the
quality of life of all those affected through the
promotion and support of research, education, and
other services.
The Soho Building
110 Greene Street, suite 307
New York, New York 10012
Telephone: (212) 219-8180
Fax: (212) 966-
9247
National Hemophilia Foundation Programs:
HANDI (Hemophilia and AIDS/HIV Network for the
Dissemination of Information) is the information
center of the National Hemophilia Foundation. The
center collects and makes available information on
hemophilia, AIDS/HIV as it relates to hemophilia,
and related topics. HANDI's information specialists
handle requests from professionals and other
individuals from 9:00 a.m. to 5:00 p.m. EST,
Monday through Friday. Information specialists will
provide information over the phone, supply
materials by mail, and handle more complicated
requests. Materials available include: brochures,
educational materials, reprints of articles, and
resource listings for specific areas of interest. Call
HANDI with your question or for further
information on services available.
Telephone: 1-800-42-HANDI or (212) 431-8541
Fax: (212) 431-0906
Message: (212) 431-3081
WONN (Women's Outreach Network of the National Hemophilia Foundation). For information on support networks, educational materials or local programs for women contact the Outreach Coordinator at (212) 219-8180.
For additional information on National Hemophilia Foundation programs contact the Department of AIDS Education and Preventive Services (AEPS) at (212) 219-8180.
Additional Information:
The following list of resources and organizations is provided for informational purposes only. These resources and organizations are not endorsed by the National Hemophilia Foundation.
National Organizations:
Compassionate Friends
P.O. Box 3969
Oak Brook, IL 60522
(708) 990-0010
Compassionate Friends; a national organization with
about 500 local support groups for parents of children
who have died.
M.A.P. (Mothers of AIDS Patients)
P.O. Box 1763
Lomita, CA 90717
Barbara Cleaver (212) 530-2109
The Elisabeth Kubler-Ross Center
South Rte. 616
Head Waters, VA 24442
(703) 396-3441
Elisabeth Kubler-Ross Center-provides educational
materials about death and dying. Gives workshops
around the U.S., Europe and Australia for people in
transition.
Self-Help Clearinghouses:
Self-Help Clearinghouses provide information about all
aspects of Mutual Aid Self-Help Groups. The following states
have Self-Help Clearinghouses:
Go to the the Coping Menu
Go to the HIVpositive.us Main Menu
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